While I was profiled for this show, as were others, the people you are about to watch below are the real heroes. As hard as it is for me to manage, and as much slips away from me day-to-day, I know it's thousand times harder for my family to watch than for me to experience. Every day I get weaker and sicker but I am an adult. To helplessly watch catastrophic disease and illness happening to a child, your child, can be nothing short of torture.
And yet, this family finds grace in the horror. The strength and love for Joel as shown by this family, the way they stand strong for him and their other children in the face of every parent's nightmare demonstrates immense power and love that all can learn from.
I wish them more miracles and endless love.
I know they'll get the love. In fact, I know they have the love.
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