If you need help, if you want to talk to somebody who has cancer, who has incurable cancer and is still going, if you have any questions about what I experienced during treatment, all you have to do is ask me. I am very open about it all. Keep in mind, I am NOT a doctor, just a patient. I can only share my experience, I can't tell you if you have cancer, how you will react to any treatment or what you should do. I can only tell you what I would do, what I know from my own research, and what my thoughts are.
My facebook page is https://www.facebook.com/ButdoctorIhatepink. Please like it! My ego is all caught up in there, isn't that weird?
My twitter is @butdocihatepink. Oddly, no ego there. :)
If you email or message me on facebook or twitter I will respond. (Warning - I only check twitter once a day, the rest I check multiple times so they are a better bet). You will need to like my facebook page to message me.
The folks at Soul Pancake did a nice video of me and you can see it here:
I filmed it November 2012 and am still here as of this writing, January 2015. A drug came out that was not available at that filming that I got, and it has put me in remission, so I am lucky. Several of the people in their series have died so I have some survivor's guilt. If you notice, in their description, they got my age wrong - they said I was 52. I was 54 - but what lady corrects her age? I'm 56 now.
As I said in the video, my goal since learning my cancer was end-stage was to make it to my youngest son's graduation, which I did. He is now a freshman at Caltech.
Many people who comment on that video seem to think that I don't know about all the alternative treatments out there, but of course, I'm an intelligent woman who is active in the cancer world - so I do. And, I reject them as not being scientifically proven. If somebody else wants to believe these unproven theories, I won't change their minds, and thus would appreciate the same courtesy.
I suggest an excellent book called The Cancer Chronicles by George Johnson which will give you a good background in how long cancer has been around and how little it seems to have changed over the millennia.
I also believe that there is a psychological component to believing that anything we can eat or do will change things. if people think they have all the answers, they feel confident will know what to do if something devastating happens to them. Everybody wants to distance themselves from tragedy by thinking they know how to prevent it, when in reality, it can happen to anybody, and nothing can stop it.
So, I have had conventional therapy and a lot of it. You can look at my treatment list page to see what I've done so far.
If you watched the Soul Pancake video, you know being a mom is the most important thing to me. Being a wife, being a family person - that's what I live for. I was a high school secretary, a job I loved. I have had many jobs in my life, from bartender to IT manager. But school secretary was my favorite. I was sad to have to give it up but years of chemo and then having c-diff ended my ability to work. I have two greyhound dogs, and I have a cat. I live in an old, 70 year old house with people I love. I enjoy scrapbooking, making cards, watching hummingbirds and quiet things. I used to be very active but now I have learned to appreciate a peaceful life.
Since my remission in 2015, I have started exercising and trying to regain some energy and health. I am speaking at SXSW 2015 in Austin, which I am excited about. I also am involved in helping new bloggers get started. None of these things pay but they keep me busy.
Here are some photos of me that will eventually be in order - Cancer through the years:
|Me on my 50th birthday in '08- |
4 months before I was diagnosed
|Healthy me with my nephew at his wedding in '07|
|After Mastectomy 2009|
|After first chemo, 2010|
|Hair Growing Back, Summer 2010|
|Some surgery, can't remember!|
2012 - Hair cut into a pixie